I am a bereaved mother, griefing for loosing my precious and only son, Johan Imanuel. He was only 2.5 years when he passed away, after a long time struggling for a normal life. Johan was born prematurely and had a serious congenital disorder called pure esophageal atresia (EA type A), where the upper and lower pouches of his esophagus were disconnected.
Johan underwent six major surgeries to repair his esophagus : once when he was only less than 24 hours old and the five others when he was between 1.5 and 2. He escaped several times from the shadow of death due to complications in the post operative phases.
The doctors finally managed to pull his stomach up into the diaphragm. So, unlike us Johan’s stomach was inside his chest. Things looked promising when he was finally able to eat food of the consistency of smooth poridge until he got ileus several months later , a blockage in the intestine caused by severe infection. Ileus itself is not necessarily connected to his EA. It could happen to anyone. But the new “configuration” of his digestive system and also his condition that had not yet completely recovered from the series of surgeries worsened the situation. He vomited liquid faeces (yes, faeces !) and his lung was flooded with it. My only son, who was always a good fighter, breathed his last breath in front of our very eyes, his parents.
This blog is dedicated as a remembrance of Johan’s brief life. This is also a place for me to cast out my feelings, my anguish heart.
Turut berduka cita, semoga tabah dalam menghadapi cobaan…
air mata adalah suatu misteri yang ajaib… thanks for sharing all of these….
Rev 21:4 Dan Ia akan menghapus segala air mata dari mata mereka, dan maut tidak akan ada lagi; tidak akan ada lagi perkabungan, atau ratap tangis, atau dukacita, sebab segala sesuatu yang lama itu telah berlalu.”
Hesti & Ageng, our tears go with both of you…… May He, our God, alone heal the wounds at His own time….. Do look forward to meeting Johan again in the place Jesus has provided for him and all of us who put our trust in Him.
Hesti & mas Ageng,
Aku turut berduka dan ikut tersayat hatiku. Tapi yakinlah, itulah yang terbaik buat Johan yang belum punya dosa.
Dia sudah bahagia di sana.
Salam, Wana